Epilepsy
Epilepsy, or recurrent seizures, is a neurological condition that is one of the most disabling conditions in Uganda and sub-Saharan Africa. This can be due to the associated social isolation and problems sustaining work, if not appropriately treated. Untreated epilepsy also poses more serious consequences. Epilepsy needs to be addressed in Uganda to sustain better outcomes for the individual, but also for the community.
Basketry in progress.
The true burden of epilepsy is unclear, due to lack of studies done but also undiagnosed cases and all around stigma of suffering from seizures. It is estimated to affect at least 5.4 million people in sub-Saharan Africa (Paul, Abigail, et al), almost double if that in Asia, Europe, and North America (Ba-Diop, Awa, et al.). Much of epilepsy has no clear cause, generalized as an error in wiring when it comes to the electrical circuits of the brain. In sub-Saharan Africa, however, we know that birth trauma, nervous system infections, and head injuries play a large role; one study found that in one sub-Saharan African country, malaria was the source of first seizure occurrence in 71% (Ba-Diop, Awa, et al.).
Since launching our epilepsy support program, we have built a community stronger through their kinshup and knowledge, with better seizure control, and improved psychomotor and social outcomes. We have implemented safety and medication checks, psychological support, cognitive exercises, fine motor skill development via basketry weaving which also has generated income for these patients who have otherwise believed they could never contribute to society or their family’s financial well-being. Some patients have been able to advance their motor and cognitive milestones.
We hope our work at MCMC Uganda will not only help treat those suffering from seizures, but also help prevent the occurrence of epilepsy by having access to good prenatal care and birthing experiences, as well as working to prevent and treat infectious diseases like malaria. Donations directly support travel to specialist follow up and testing, medications, supplies for basketry and other cognitive/motor exercises, and group activities that build community.
